
/seizure awareness


Sadly, not many people understand why a person is having a seizure....especially if they have them most of their life. They look done on those people as if they did something wrong. They assume that a person having a seizure "must be on drugs" or "didn't take good care of themself at a certain time of their life".
What really happened is: they were born this way. This is how they came out of their mother's womb. A person who has many seizures are said to have Epilepsy.
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Epilepsy can be caused by benign (non-cancerous) brain tumors that are very slow growing. These are called low grade tumors. Seizures may be the first sign of these tumors – persons will then undergo a magnetic resonance imaging (MRI) study of the brain which will show the tumor and its location. Seizures are focal onset, and start in the region of the tumor – the symptoms of the seizure can often (but not always) provide a clue to where in the brain the tumor is located. Sometimes the seizure can spread to both sides of the brain, leading to a focal to bilateral tonic-clonic seizure. These low grade tumors are located most commonly in the temporal lobe, but can arise anywhere in the brain.
The treatment of seizures associated with low grade tumors starts with antiseizure medications. However, in many people, medications do not provide good seizure control, and surgery is often needed in drug-resistant cases.
Challenges Faced by People Living With Epilepsy
No matter the type of epilepsy, it can bring difficulties beyond the seizures themselves. Epilepsy can affect mood, disrupt sleep, affect social interactions, lead to thinking and memory problems, cause bone health issues, and, in some cases, increase the risk of early death. If any of these common challenges are affecting you or your child, talk to a health care provider to explore your treatment options.
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Can You Have a Seizure and Not Know It?
Some types of epilepsy can lead to situations in which a person isn’t aware that they’re having seizures. Some types of focal seizures fall into this category, as can absence seizures. Different types of epilepsy can cause these seizures. If you suspect that you or someone you love is having seizures but is unaware of it, contact a neurologist right away.

What Are DNETs, Gangliogliomas, or Low-grade Tumors?
Dysembryoplastic neuroepithelial tumors (DNETs) and gangliogliomas are two types of benign (non-cancerous) brain tumors that are slow growing. These growths are similar to glial cells (provide support for the central nervous system) and neuronal cells (the functioning component of the central nervous system).
They are often associated with seizures that are difficult to control with medications. This is called drug-resistant epilepsy. These tumors are responsible for about three quarters of all brain tumor-associated epilepsy that are found after surgical resection.
These tumors are usually identified between childhood and adolescence. However, because they are slow growing, they may not be diagnosed until a later age. Typically, this will be at the time of the first seizure.
How Are They Treated?
Because the tumor itself is benign (non-cancerous) and very slow growing, it can stay for many years without significant change in size and does not invade other brain regions. The focus of the treatment is to control the seizures that are caused by the tumor.
In most cases, anti-seizure medication is used for treatment. However, most people with low-grade tumors will have drug-resistant seizures. Surgery should be considered in cases where 2 antiseizure medications have not stopped the seizures.
In most cases, surgery is possible and often will stop seizures. If the tumor arises from a region of the brain that is responsible for important brain function, surgery might not be possible without causing loss of function.
What Causes Low-grade Brain Tumors?
The exact cause of low-grade brain tumors is not well understood. In many cases, it is caused by Focal Cortical Dysplasia (FCD).
What Causes FCD?
We know that FCD is due to abnormal formation of the cell layers and brain cells during the brain formation, while the baby is still in the womb. Genetic factors likely play a role in some cases, and certain genes such as DEPDC5 can result in FCD in multiple family members. These changes usually happen in the advanced stages of the brain maturation which explains why these changes are often limited to small region of the brain. In other cases, it is thought that utero infection may play a role in FCD.
Utero Infection can occur when harmful microorganisms invade the reproductive system, leading to various symptoms and complications if untreated.
Common types include:
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Endometritis: A bacterial infection in the uterus, often caused by sexually transmitted infections (STIs) or bacteria that occur in the vagina.
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Chorioamnionitis: An infection that can start in the vagina and spread to the uterus, affecting the placenta or fetus.
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Pelvic Inflammatory Disease (PID): An infection of the upper reproductive organs, including the uterus, which can cause scar tissue and other complications if left untreated.

Medicine
Anti-seizure medicines limit the spread of seizures in the brain. It may take time to find the right medicine. Sometimes you'll need a combination of medicines. It's very important to take your medicine as prescribed.
Medicines work for about 2 in 3 people with epilepsy. If your seizures continue while taking medicine, tell your health care provider right way. They make want to change the amount or type of medicine you take.

Health care spending
Health care spending is HIGHER for people with epilepsy or a seizure disorder, than for people without these conditions.
In 2019, the average annual health care spending for epilepsy and seizures alone was $24.5 billion in the United States.
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Seizure costs were $19 billion.
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Epilepsy costs were $5.4 billion.​​
Barriers to care
Adults with epilepsy have a harder time getting health care compared to adults without epilepsy. They were more likely to:​
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Be unable to afford any medicine or specialty care.
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Be unable to afford dental or vision care.
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Skip doses of medicine to save money.
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Have trouble finding a health care provider or specialist.
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Delay care because of transportation barriers.
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Live in families having problems paying medical bills.
CANNABIS
4 SEIZURE TREATMENT
What Is CBD?
CBD is a chemical found in the cannabis sativa plant. Although tetrahydrocannabinol (THC) is found in the same plant, CBD doesn’t make you feel “high,” like THC does. CBD can be isolated from either:
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Hemp plants (plants with less than 0.3 percent THC)
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Marijuana plants (plants with more than 0.3 percent THC)
When CBD is isolated from the plant, it can be put in other products, such as oils, capsules, gummies, or creams. CBD has been studied for potential health benefits for certain medical conditions. In studies, it’s shown promise for helping some people with conditions including:
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Anxiety
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Difficulty falling or staying asleep
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Chronic pain
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Addiction
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Depression
CBD has shown its most convincing results in treating epilepsy in children. In fact, the evidence was so strong that the U.S. Food and Drug Administration (FDA) approved Epidiolex to treat seizures associated with severe forms of epilepsy such as Lennox-Gastaut syndrome, Dravet syndrome, and tuberous sclerosis complex (a condition that causes noncancerous tumors).
Sativas can be consumed in various forms, each offering a different experience. Common consumption methods include:
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Smoking or Vaping: Provides immediate effects, making it easy to gauge the right dosage.
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Edibles: Offer longer-lasting effects but take longer to kick in, requiring careful dosing.
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Tinctures: Allow for precise dosing and can be added to food or beverages for convenience.
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Topicals: Provide localized relief without the psychoactive effects, ideal for pain management.
Choosing the right method of consumption depends on individual preferences and the desired onset and duration of effects.

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